KUALA LUMPUR: The parents of a 4-year-old girl with a rare congenital anomaly are seeking donations to allow their daughter to undergo heart surgery.
Wan Nurbalqis Nadhirah Wan Mohd Rozi needs to undergo reimplantation of the left pulmonary artery, monoscupid valve reinsertion and revision of the right ventricular outflow tract (RVOT), which costs RM60,000.
It is understood that any delay in surgery will result in greater deterioration of her lung and heart functions, and put her life at risk.
She was diagnosed with Tetralogy of Fallot (ToF) with absent pulmonary valve syndrome (APVS) when she was still in her mother’s womb.
The medical condition is a heart defect in which the baby is born with poorly formed pulmonary valve, which caused inefficient blood flow to the lungs to get enough oxygen.
The patient’s mother, Sofiah Liza Pijoh, 37, who was a victim of a hit-and-run accident two years before her pregnancy with baby Balqis said: “The repercussions from the accident have compromised my quality of life ever since.
“My pregnancy was confirmed after five months of amenorrhea (absence of menstruation).
“My husband (Wan Mohd Rozi) and I were informed that the pregnancy posed high risk, which could lead to fatal or permanent blindness.
“I chose to undergo emergency induced labour, and gave birth through C-section in my sixth month of pregnancy.
“I only got to hold my baby for a few minutes. She was immediately intubated, and put in a ventilator,” she said adding that Balqis was admitted to the intensive care unit (ICU) of Hospital Sungai Buloh.
“After a month in ICU, the doctor said my baby was able to breathe on her own.
“However, we still have to bring her for routine check-ups, every two weeks.”
Balqis underwent a total repair surgery in 2016 at the age of 2, whereby the doctors inserted monoscupid valve and pre-implantation of left pulmonary artery to the main pulmonary artery, using an artificial single pieced valve made of goretex.
It allowed her to breathe normally.
However, recently, the doctor attending to baby Balqis in one of her routine check-ups said her heart condition had deteriorated.
“During the check-up, the doctor heard a loud murmur.
“The doctor has detected a severe proximal left pulmonary artery stenosis (a condition with severe narrowing of the left lung artery).
“The doctor also detected free flow pulmonary regurgitation (a condition with severe leaking of artificial valve at the main lung artery) and pulmonary hypertension,” she said.
Balqis was then referred to Gleneagles Kuala Lumpur for further treatment.
Those wanting to donate can send cheques made payable to the Media Prima-NSTP Humanitarian Fund at Group Corporate Communications Department, Media Prima Bhd, Level 1, Anjung Riong, Balai Berita, 31 Jalan Riong, 59100 Bangsar, Kuala Lumpur (with the patient’s name written on the reverse side of the cheque).
The public may also send their donations to Media Prima-NSTP Humanitarian Fund’s Maybank account 5141-0532-3170 and indicate the patient’s name on the recipients reference or other payment details field.